Mianevem
Well-known member
Congrats on the teddy!
I have not decided yet.But which ornament goes on the tree?
WTF? For smart, advanced beings we suck in adding humanity in our moments of health crisis, globally, it appears.Today more miscommunication, lack of communication and general WTFery from various medical professionals.
My brother, having spent the past two nights in a hotel near the first hospital our mother was taken to, came to my home last night to discuss things with me before heading back to his own home. We received word that our mother was being transferred while he was still with me. So he decided to drive out to the new hospital that night (an hour's drive in the wrong direction for him) to see our mother settled in, and then head home.
When he got to the hospital he was told his power of attorney for our mother was not in effect because she was lucid and able to speak for herself.
My brother said, "Well, she's able to speak."
Our mother is a talker. If you ask her a question, she will answer it. Doesn't matter if she knows the answer or is completely making shit up, she will respond with something. This was true long before the ruptured aneurysm.
So the Windsor hospital staff had asked her: "How long have you lived in Canada?"
She told them 18 years.
She has in fact been in Canada almost 50 years.
They asked her where she lives now.
She named a town she did live in previously for 29 years but has not lived in for almost 20 years now.
One might think that last one at least would have been easy to verify. (I gave her current address to the first hospital the day she was admitted there!) But the new hospital staff just took her at her word.
My brother suggested they ask her a question they actually know the answer to.
So they asked her if she knew what year it was.
She told them 1973.
The hospital was more accepting of my brother's PoA after that.
Then he drove home.
This morning the hospital called him and informed him our mother was getting groggier so they wanted to go ahead and operate today. My brother authorized this. Then he called me to let me know.
I drove out to the new hospital today, which thankfully was not difficult to find. It's in a city I don't know. And I'm not used to city driving anyhow, having lived in a small town w. population <5000 people for the past 15 years, and never having had access to a car when I did live in cities. I do have a smart phone. But it's my first one and very new to me. I cannot afford much data on it and haven't figured out yet how to get it to give me driving directions without data. So I was a little stressed about driving out there. But finding the hospital campus was easy. Navigating the parking garage, on the other hand...
I hate, hate, hate trying to find parking. In a city I know, I will park a good 30 minutes' hike away from my destination if I know parking is easy there rather than drive around searching for something closer in a busy and crowded downtown core. But I had no idea in this city where I could find easy and legal parking. So I went into the hospital's visitor parking garage.
It was a freaking nightmare. Round and around in circles. No useful signage anywhere. And packed to the gills. I drove up one aisle that had no empty spots and turned out to be a dead end. No room to turn around, so had to back out (after waiting for the car that had followed me into the dead end to also back out ahead of me). On the next level I encountered a barrier with a "restricted access" sign. So had to turn away from that. By this point I had been circling around and changing directions so many times, I had no idea if I was coming or going any more. I next found my way onto another level (or perhaps back on the level I had been on previously--I honestly have no idea) where I saw another aisle which I recognized as looking very similar to the first dead-end aisle I had gotten stuck on. And I could see there was a car in that aisle ahead of me, trying to turn around to get back out of it. So I waited. Rolled down my window. Asked the driver when she approached if she had a clue where we could find parking in that garage or, failing that, how to escape it. Unfortunately she was as lost and frustrated as I was. We both kept circling around. Eventually found our way up to the roof level of the parking garage, where there were spots available.
So I parked. Hiked down three flights of stairs before I got to a level that had access to the hospital. Then wandered around lost in the maze of a hospital until I found somebody wearing hospital scrubs who wasn't racing around too quickly for me to stop her to ask for help. She led me onto an elevator, told me which floor to get out on, and which direction to walk in when I did, and where to find the phone I needed to use to request access to the ICU.
I am used to hospitals where you walk in through the front door and there is a reception desk right there, and some nice person gives you directions to where you need to go which really aren't even necessary because everything is clearly signposted. This hospital was not like that! But I found the ICU and the phone and got access to the unit. Which was a freaking zoo. I basically stood in the hallway looking lost until somebody asked me who I was there to see.
Finally made it to my mother's room. She was in a private room which was quite large but also quite full of medical equipment. Her nurse was sitting at a desk outside the room. (In the zoo-like hallway.)
I asked the nurse if my mother had been for the surgery yet.
The nurse looked at me blankly. Said my mother was not scheduled for surgery this day.
I expressed my confusion. Said my brother had called me that morning and informed me she was.
The ICU nurse said she had had a drain put in, but no surgery. (Apparently, in ICU-nurse parlance, having a drain inserted into one's brain does not constitute "surgery". It is only a "procedure".)
(By this point I am so stressed out I feel like crying. And I am an English-speaking person trying to navigate an English-speaking hospital. I am truly worried for any new English-learner trying to navigate that place!)
Anyhow... I went into my mother's room. She was sleeping.
Several times on my route to her room I passed "hand sanitization" stations on the hospital's walls, exhorting me to sanitize my hands to help curb the spread of disease. I want to do my part. But all these sanitization stations only offered the alcohol-based hand sanitizers that you rub on and leave on your skin. That stuff made my skin very itchy the last time I tried it. So I walked past all those stations today and in my mother's room finally found a sink with actual soap and water. So I washed my hands there. Soaped them up thoroughly like one is supposed to do. And then discovered that the tap is one you can only turn on by waving your hand in front of a sensor (which your hand is NOT in front of while your hands are actually under the stream of water) and activating the sensor only causes the faucet to run for two seconds before you have to activate it again.
Anyhow... Eventually my hands were actually clean and the soap rinsed off and dried and then I managed to walk around my mother's bed to get to the visitor chair. (There was seriously a lot of medical junk in the room and I was afraid to accidentally touch any of it.) I sat down in the chair and leaned back, and then got soap in my hair because for some reason there was also a soap dispenser on the wall right above where they had put the visitor chair.
Then I called my brother and said, "WTF? I've made it to the hospital and the ICU nurse just told me Mum isn't scheduled for surgery today."
And he said, "WTF? But I'm glad you're there."
Then my mother started waving one of her hands around.
I said, "Mum? Are you awake?"
She said, "Yes." And then fell back asleep.
Then about five minutes later a neurosurgeon came into the room and started explaining to me the operation which she did in fact want to do on my mother today.
I said, "Let me call my brother, so you can explain this to both of us at once."
So I did. And she did. And my brother and I said, yes, go ahead and do the procedure (that my brother thought he had already authorized this morning).
(The procedure is an endovascular coiling. I have no idea at this point if this is considered a "surgery" or merely a "procedure"!)
Then the neurosurgeon left, and my brother and I discussed plans for how to find out and share with one another information regarding the next steps in our mother's care, and I ended the call with my brother.
Then my mother started moving her hand again, which I had also noticed she was doing while the neuro was in the room. I asked her if she had heard what the doctor said.
She said, "Yes."
I said, "So you're going to have another procedure this afternoon."
She said, "Yes."
Then she fell asleep again.
A third time she woke up and this time moved her hand right up to her nose and started fingering her NG tube.
I said, "Mum, you have to leave that alone."
She said, "I know." And then fell asleep again.
Then the neuro came back and asked for my phone number so she could call me when the procedure was over (or earlier if there were complications). I asked her to call my brother and gave her his #, since I was going to leave once they took our mother in to surgery/procedure/whatever-it-was, and I don't use my cell phone while I'm driving.
Then a couple of other hospital employees came in and unhooked my mother from all of the machines in the ICU room and hooked her up to portable machines and then wheeled her and the whole kit and caboodle out of the room.
Then I left the ICU.
I had no idea how to get back to the parking garage. And in the hallway outside the ICU there were only friends and family of other patients, most of whom looked even more distressed than I felt.
I went into a stairwell where I found two young adults sitting on the floor talking. Neither of them was crying. So I asked them if they could tell me how to get to the parking garage. They decided the guy would actually take me there, which he very kindly did, the only way he knew how, which was to go all the way down to the street level and then go around the outside of the building to get back to the parking garage. Where I had parked on the roof.
But I made it back to the car. Paid for parking. Found my way out of the garage. (Which was blessedly simpler than finding my way into it.) Found a street name I recognized. And managed to get onto the street I needed to take to get back out of town, actually driving in the correct direction to get out of town.
I made it back home shortly before dark. (Which is important to me because I have to drive on country roads to get home where the speed limit is 90kph but I usually cannot have my high beams on because there is oncoming traffic, and there are no street lights, but there are deer and other animals that wander onto the road and sometimes cyclists who for some reason in my neighbourhood like to drive at night with no lights on their bikes and I'm basically terrified to drive at night here as a result.)
My brother called me just as I walked through the door. He had just got off the phone with the neurosurgeon, who said our mother's procedure had gone well. The neuro had not been able to get in through the first leg she had tried, so she tried the other leg and that worked fine. She also had told my brother we should expect our mother to remain in the further-away, scary big city hospital for at least 21 days.
My brother lives a 3.5 hour drive away from this hospital. And he has a wife and two children. And a full time job. He cannot be driving out to this place every day to see our mother. And he cannot keep sleeping in hotels away from his family. Meanwhile, I found the experience of trying to navigate this hospital today so stressful I would very much like to never go there again ever in my life for any reason. And I'm very freaked out that the likelihood of our mother ending up in long term care seems to be growing daily. Which will mean we have to sell the house I am living in. Which will plunge me into a housing crisis. I need to be spending my time and energy on building a long-term future for myself right now. Not burning through my time, money, and nerves driving back and forth from a far away hospital. Also: LTC beds have long waiting lists here. And to free up your hospital bed, they will stick you in the first one that comes available. Which might not be anywhere near where anyone in your family is living.
Also: I feel angry that this happened to our mother only 3 months after she just got her life back after so many years of looking after our father.
I apologize. This is a really stressful and depressing post.
I am super stressed out right now.
But:
I am healthy.
Whatever happens, I will not be losing my current home right away.
My childhood friend who came out to support me this week told me she will not let me become a street person and she would let me crash on her sofa if it comes to that. (Her house is already VERY crowded, and her sofa is the only space she has left to offer me. But it would actually be pretty nice to be living with a friend.)
So I will be okay.
Things are going to be tough for a while. But I will be okay one way or another.
One day at a time, right?
(My brother said, two hours. He feels he's not able to plan his life out more than two hours ahead at the moment.)
Four down. One to go!
Take care of what you can, but do guard your limits. You don't have to burn yourself out looking after of someone else.